Νέα :Video of Biobanking: Ethical & Legal Issues Conference

The Workshop on Ethical & Legal Issues Concerning Biobanking took place on Tuesday, June 20 2017 at the Biomedical Research Foundation of the Academy of Athens.

The workshop aimed to increase awareness on ethical & legal issues that immerge within the context of biomedical research.  Experts representing key institutions across Europe & Greece analyzed the changes that the new General Data Protection Regulation (GDPR) will bring to biomedical research.  Key insights concerning the various ways that certain EU countries plan to implement the GDPR in their respective legislations were explored.

The workshop was open to all. Researchers, bioethicists, lawyers, students, as well as members of the general public who wished to get informed on ethical & legal issues concerning biobanking attended.

http://www.bbmri-eric.eu/wp-content/uploads/Report-workshop-Athens-20-June-2017_FINAL.pdf

 

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Opening Remarks

Dr. Dimitris Thanos
Academic, Member of the Board of Trustees of the Biomedical Research Foundation of the Academy of Athens

Dr. Olga Tzortzatou
Legal counselor and Member of the Bioethics Committee of the Biomedical Research Foundation of the Academy of Athens

 

“Legal challenges with regards to biobanking”

Prof. Ismini Kriarι
Rector of Panteion University

 

“Research on health data in Greece”
Dr Fereniki Panagopoulou-Koutnatzi
Legal Auditor at the Hellenic Data Protection Authority Research on Health data 
 

Video not available

 

“The experience of the Hellenic Umbilical Cord Bank”
Prof. C .Stavropoulos-Giokas MD,PhD
Head of the Hellenic Cord Blood BANK
 

 

“BBMRI-GR:  The experience gained by setting up the Hellenic Biobanks Network”
Dr. Sissy Kolyva
Head of International Scientific Cooperation Department, Hellenic Pasteur Institute, Athens
 

 

“Working with patient samples - Biobanks, the Greek and European experience”  
Dr. Anastasia  Chatzidimitriou
Researcher - Assistant Professor Level, Institute of Applied Biosciences, Centre for Research and Technology Hellas

 

“Consequences of the GDPR for biobanking & health research”
Dr. Jasper Bovenberg
Co-Director BBMRI ERIC ELSI, Legal Pathways Institute for Health & Bio-Law

 

“The implementation of the GDPR in France and current works regarding data protection in scientific research”
Gauthier Chassang
Lawyer at the BIOBANQUES Infrastructure in Toulouse & member of the BBMRI-ERIC CS ELSI

 

“Reasonable expectations into consent to the use of health data”   
Dr. Victoria Chicco
Lecturer of Law at the University of Sheffield, founding member of the Law and Governance Genomics England Clinical Interpretation Partnership (GeCIP)
 

 

“Which are the new developments in health research infrastructure in the Netherlands: the ethics of reuse & FAIR data stewardship”  
Dr. Martin Boekhout
Policy advisor on ELSI issues, BBMRI Netherlands
 

 

“The Code of Conduct development”
Dr. Michaela Th. Mayrhofer
Chief Policy Officer/Senior Project Manager

 

                                     
Discussion Session